Meet Lillyana

Meet Lillyana

Meet Lillyana

Lillyana is ALMOST 2! She was born with a Transitional A/V Canal heart defect. At 6 months old, she was diagnosed with Failure to Thrive, GERD, and received a g-tube due to oral dysphasia. She was also diagnosed with Heterotaxy, "bilateral left-sidedness," which means many of her organs are misplaced within her body. She has malrotated intestines, two left lungs, interruption of the IVC with azygos continuation, and she has 13+ spleens that we don't know if any of them function or not. She had her heart repaired at 9 months old. Lilly was then diagnosed with Junctional Escape Rhythm, to which she'll eventually need a pacemaker.

Lillyana's mama says, Lilly is a very determined and feisty child. She has not let anything slow her down or stop her. She has a smile and laugh that lights up the room!

She loves animals, hairbows, necklaces, and her big brother, Colten!

 

We, at 7 Pines can tell she worked very hard on her beautiful piece of art! She did an amazing job! Please give Lillyana a HUGE hug and tell her we LOVE it! Thank you so much for submitting this masterpiece to Ellie's Project! We are honored!

Voting will be opened up on Otober1st, 2022 via Facebook! 

 

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