Ellie's Project

Meet Raegan! She has been diagnosed with Metopic Craniosynostosis and laryngeal cleft. Raegan was born with both metopic Craniosynostosis and a typ...

Meet Eva! Eva has been diagnosed with Cri du chat syndrome or 5p- syndrome. Cri du chat is a genetic disorder where part of the 5th chromosome is m...

Meet Colton! He is 3 years old and has been diagnosed with Hypo-plastic left heart syndrome & short-gut syndrome Colton was diagnosed in the wo...

Meet Evalyn! Evelyn has what is known as Edwards Syndrome (Trisomy 18) Evalyn has an extra copy of her 18th chromosome! She is full Trisomy 18, so ...

Meet Trey! Trey is 2 years old and has been diagnosed with Esophageal Atresia with Tracheoesophageal Fistula. Trey was born with Type B (one of the...

Meet Little Man! Little Man has been diagnosed with Cerebral Palsy.  Cerebral palsy is a physical disability that affects movement and posture. Cer...

Thomas was diagnosed in utero with bilateral clubfoot. Meaning his feet were turned inwards and would have to be corrected with cast each week for ...

After an incredibly close race, (literally had to screenshot and count to make sure) we have our first ever, Eliie's Project winner! Congratulation...

Meet Little Bear. He has been diagnosed with Cerebral Palsy and is one year old.  Cerebral palsy causes impaired movement associated with exaggerat...

Meet Josephine. She is 7 years old and has been diagnosed with CDKL5 and Congenital Myotonic Muscular Dystrophy. Josephine's mom says, that she has...

Faith is two years old and has been diagnosed with Cerebral palsy, hydrocephalus, craniosyntosis, CVI,RES  Faith's mom says, our sweet girl has cer...

Meet Jayden! Jayden is 5 years old and has Angelman syndrome Angelman syndrome is a rare nuero- genetic disorder that affects 1 in 15,000 child bir...