Meet Jayden

Meet Jayden

Meet Jayden

Meet Jayden! Jayden is 5 years old and has Angelman syndrome

Angelman syndrome is a rare nuero- genetic disorder that affects 1 in 15,000 child births. It is caused by the loss of function of the UBE3A gene in the 15th chromosome that is derived from the mother.
People with angelman syndrome have developmental problems/delays, that become noticeable around the age of 6 to 12 months. Other common symptoms and signs will be noticeable in early childhood, such as walking and balance issues, gastrointestinal issues, and little to no speech. Epilepsy is commonly diagnosed along with angelman syndrome since almost all angels have seizures beginning as early as a year old.
Despite all the issues they face, people with angelmans typically always have a happy demeanor and love everyone!

Jayden's mom say's that Jayden has faced so much in his short 5 years of life, that include almost losing him in 2020 because of his seizures. But through it all he has been one of the strongest kids I know. He's so determined. He can not walk or talk but he finds his own way around things and he works so hard at any goal he's given. He's come so far since birth and had to overcome many obstacles, but he never gives up. He keeps pushing. And he ALWAYS has a smile on his face no matter what! He's taught me so much about strength, love and support. He's my hero!

Jayden loves music and lights. He loves his tablet and watching any kind of videos, and he loves water (which is typical for an angelman child). He's always happy and so very loving toward everyone. You'll almost always see him with a smile on his face

Jayden's mom says, I gave him life but he gave me a reason to live!

Jayden is unable to draw, so his sister submitted a drawing on his behalf. Such a sweet gesture from a loving sibling. Please tell Jayden's sister that we love her artwork, and we are positive Jayden loves it, too!! 

 

 

Leave a comment

* Required fields

Please note: comments must be approved before they are published.